I see a rheumatologist every six months for my disease– Wegener’s Granulomatosis. I was first diagnosed with the disease in 2003 after a real fight, where I ended in the hospital for almost five weeks. The next year, while I was on IV Cytoxan and high dosages of prednisone was even worse. Some of my experiences are in this book that I wrote several years ago for other WG patients.
The good news is that C-ANCA is not showing up in my blood, meaning that the disease is quiet. As my rheumatologist said, “It is a very sneaky disease.” One of the things this disease did was damage both of my kidneys.
Recently, I started to have headaches and low energy. It was a gradual slide after the flu I had in February. Yesterday, I saw my nephrologist, who watches my kidney function. The creatinine levels spiked. I know that most of you do not know what that means. The kidneys have two functions: make water (or urine) and clean the blood. The high creatinine levels in my blood show that the kidneys are not filtering my blood well. But, you can survive on one kidney. I am surviving on less than that. When the creatinine levels spike, it can mean that my kidneys are going towards an inevitable decline.
So my inability to concentrate on my writing and the need to cuddle my dog, probably has been caused by the spike in creatinine levels.
The good news is that my levels did slide down in the last two weeks. The bad news is that I am taking more medication than ever as well as I have to be more conscious of my health.
So apologies again. I am one-third through the second draft of Dragon Boy. I hate excuses, but please forgive me.